Kathleen's World
All About MITOCHONDRIAL DISEASE, or what I know of it from personal experience anyway. How our first child was diagnosed, then more of them, then myself.
Associated with mitochondrial disorders, hearing loss is one of many clues to diagnosis. In the case of our son, Tim, being Deaf was considered something to be immediately surgically tampered with--Rick and I weren't so sure. Read why (in this very out of date) and still controversial paper on "When Your Perfect Child Is Deaf". *NOTE: I am not current any longer on the issue, so cannot speak intelligently on it at this point.
Care to Meet the Family? A bit more detail on who's doing what, and how the mito disease is affecting each individual.
- Chris & Cristi
- Stephen
- Emily
- Sarah
- Annie
- Tim
- Daniel
- Claire
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Last update: May 16, 2009